So, Sunday was an incredibly hard day for me and my family.
It was my son’s 5th birthday.
Evan died on 19th September 2016 and lived for 11 hours.
He was diagnosed with Patau’s Syndrome (Trisomy 13) at the 20 week scan, my wife and I were faced with an impossible decision. Knowing all the facts, we decided to continue with the pregnancy.
When Evan passed it was like falling down a rabbit hole.
You emerge into a new reality. The old you is gone and there’s no going back.
“But what is grief, if not love persevering?”
Grief affects us all differently, but for those lucky enough to experience a guiding light of support from charities, coucellors, networks, friends and family. It takes time, but day by day you start to feel a little brighter.
Given the loss our family has seen, we still consider ourselves lucky and have been blessed with 2 daughters. Dottie, 6 years old (Evan’s older sister) and more recently Norah, 4 months old.
Each year we have a family day to celebrate the short life of my beautiful little boy. Our day always starts the night before. My wife paints a pebble with the year that marks his age and I arrange a numbered flower oasis. In the morning we take these to the cemetery and spend a short time wishing him a happy birthday and thanking him for the many gifts he has given us. We then set out to have the most fun and enjoyable day we can. This year was the WB Harry Potter Studio Tour. Pure Magic!
The drive for the charity work I do is for him, and for all the hundreds of thousands of family’s who need the same level of love and support we received.
My wife and I wouldn’t be as positive and strong as we are today if not for them.
So, if you come across a fundraiser post of mine. Please take a moment to look and consider donating.
Thank you for reading.
See the original post here: https://www.linkedin.com/posts/aron-lane-b4221671_love-activity-6846050090142965760-4mLe
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